As medical disorders go, methylmalonic acidemia—MMA—probably is one of the lesser known. There are no monster Labor Day telethons to fund research into this inherited metabolic disorder. MMA can cause a buildup of methylmalonic acid in the bloodstream, resulting in severe ketoacidosis and, often, death.
The boys of Blackthorn can’t single-handedly replicate the success of a Jerry Lewis telethon, but, hey, they’re going to give it their best.
You can help Blackthorn raise money for research into MMA by slipping into your dancing shoes and traipsing on down to the Knights of Columbus on Baltimore Pike in Springfield-Delco Sunday, November 2, for the 8th annual “Ceili for Kayleigh.” All proceeds benefit MMA research. The event goes from 4 to 8 p.m.
The organization is named in honor of (soon to be) 9-year-old Kayleigh Moran. The Moran and Boyce families, together with her wide circle of friends, created the fund in her name to raise money for the research that is being conducted to find a cure for this disease.
“Ceili for Kayleigh” is dependent on continued and new support from individuals, clubs, organizations, and corporate sponsors to further its work. The organization is asking you to contribute to the cause in any way you can.
At the 8th annual benefit, organizers will be holding a “Pick-a-Prize” raffle table. Donors are welcome to give any type of “new” item that can be raffled off at this table during the benefit. (Examples: Gift certificates, sports items, signed memorabilia, crafts, electronics, business t-shirts.) You can also sponsor a table, enabling you to place your business cards, menus, coupons, and signs on the table that you sponsor. Because this event will be well attended by the local community—last year’s attendance reached 500 people—it is a great opportunity to advertise your business for the low cost of $50. Please make checks payable to “Ceili for Kayleigh.”
Tickets are $25. For tickets, call Marty Moran at (610) 356-6072.
